For many people, music is a balm for the soul — but it can be life-changing for kids with autism.
Kana Kamitsubo-Markovic and Sasha Markovic, both music teachers, opened the Queens-based Hug Music in 2014. Hug Music offers a music therapy program called Musicreative that works specifically with kids on the autism spectrum.
Music therapy teaches various musical techniques to address the physical, emotional, cognitive and social needs of an individual. As a subfield of music therapy, Musicreative works with both visual as well as auditory clues, creating an intellectual and emotional outlet by stimulating both hemispheres of the brain and working to improve the social relationships of people with autism.
Most music schools for children focus solely on the technical aspect of learning about music. While Kana’s Musicreative method is widely praised, Hug Music is still the only music therapy school in America to incorporate such techniques into their programs.
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Tag: autism
These Parents Started Businesses to Employ Autistic Kids Like Their Own
Valerie Herskowitz never imagined she’d become an entrepreneur until her son, Blake, was diagnosed with autism. And though John D’Eri had several company launches under his belt, he too was motivated by his own autistic son to look to a new business model.
Herskowitz’s endeavor, The Chocolate Spectrum, grew out of an informal therapy program she had been running from her home kitchen in Florida. In 2016, she opened the doors of her new chocolate shop and job-training center to the public.
Nearby, John D’Eri, along with his son Tom, had launched Rising Tide Car Wash in 2013 as a means to boost the employment opportunities for his autistic son, Andrew. Today the enterprise has grown to two locations in Florida that employ more than 60 people.
Statistics show these kind of work programs are sorely needed. Approximately 80 percent of people on the spectrum are unemployed or underemployed. The good news? Herskowitz’s shop and D’Eri’s car wash are just two of a growing number of businesses working to create job opportunities for adults with autism.
Herskowitz met John D’Eri at an autism fundraiser. Through Rising Tide U — D’Eri’s related initiative that offers online courses to help aspiring entrepreneurs launch similar companies — she was able to turn The Chocolate Spectrum into a viable business.
“If we can really prove to the business community that there’s real value in employing people with autism, we’ll close the unemployment gap,” says Rising Tide’s Tom D’Eri.
Watch the video above to learn more about Herskowitz and the D’Eris — and the power of this new business model.
Upstanders: Employing the Full Spectrum
John D’Eri set out to find a job for his son, Andrew, who is autistic. His journey led him to open a car wash where 85 percent of the employees are on the autism spectrum — and business is booming.
Upstanders is a collection of short stories celebrating ordinary people doing extraordinary things to create positive change in their communities produced by Howard Schultz and Rajiv Chandrasekaran. These stories of humanity remind us that we all have the power to make a difference.
How Independence Day Clothing Is Reinventing the Way Children With Autism Get Dressed
Michele Iallonardi’s son Jackson, 12, has autism, and while he can physically put on his clothes, he can’t differentiate between right and wrong sides or front and back. “You must actually hand him the clothes the right way and ‘coach’ while he puts them on,” says Iallonardi, of Hauppauge, N.Y., who is also the mother of 10-year-old twins Bennett and Luca. “This should be a skill that he can do independently,” she says, but Jackson can’t because regular clothes have zippers, buttons, seams and tags — often insurmountable obstacles to getting dressed for children with an Autism Spectrum Disorder (ASD).
Lauren Thierry, a mother of three boys, is very familiar with these limitations. Her oldest, 16-year-old Liam, has autism, and it was around the time he turned 7 that she envisioned an easier morning routine. “A scratchy shirt tag, a twisted sock seam, an ordinary wristwatch — that stuff can send someone with autism into tantrums, can make them tear off a shirt while on a school bus or kick off a shoe in a shopping mall,” says Thierry, who lives in New York City.
But thanks to the recent launch of Independence Day Wearable Technology, Jackson, Liam and their families are dressing more easily every day.
Thierry — a former journalist who left her job to care for Liam full-time — used her background to research clothing options for young adults with autism. She produced the documentary “Autism Every Day,” and spearheaded Autism Awareness Day at Citi Field, home of the New York Mets. In fact, it was at a Mets game when Liam, then 12 at the time, came out of the bathroom with his pants halfway down that Thierry knew something had to change, because he “still did not have the fine motor skills to zip and button his fly.” Thierry’s advocacy work revealed that many other families with children on the ASD spectrum experience the same issues.
Thierry met with New York City-based designer Dalila Anderson to see if her idea for a line of sensory-sensitive, stylish clothing was feasible. “She wanted to know if we could come up with an idea to make clothing reversible, seamless, etc.,” says Anderson. “I said yes, and just started sketching.”
Anderson, who studied at the Parsons School of Design, serves as Independence Day Clothing’s creative/production director, designer and design consultant, while Thierry is the company’s president. The clothing is made in New York City, using natural fabrics and fibers whenever possible. “That’s a big deal, not only to the autism community, but for me as a designer,” says Anderson.
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The line features rugby shirts, cargo pants, dresses, tunics, leggings and hoodies that are seamless, tagless, buttonless, zipperless and either two- or four-way reversible. Careful craftsmanship and details address the shape and weight challenges facing tweens and teens (the average wearer is 10 to 16 years old) with ASD who are going through puberty. Necklines and waistlines are equally meted so clothing can be turned inside out or backward and forward with ease. “Children want to be able to hang out with friends, and feel like they are just one of the other kids, not have their clothing unzipped, unbuttoned, or backwards, in a way that other people take for granted,” Anderson says.
The Centers for Disease Control and Prevention currently estimates that about 1 in 68 children in the United States has been diagnosed with ASD, and according to the National Autism Association, roughly half, or 48 percent, of those children will attempt to wander from a safe environment — a rate nearly four times higher than their unaffected siblings. So perhaps ID Clothing’s most compelling innovation is the soft, sensory-sensitive, hidden compartments that house a small GPS device. ID Clothing truly is wearable tech — 11 different devices were beta tested to get the details right. The GPS device “had to be placed in a way where it wouldn’t bother the wearer and it wouldn’t be something someone else could see,” says Anderson. Customers receive a free GPS device with purchase, and through a partnership with Phoenix 5 Global Tracking can set up a plan to utilize the EMPOWER GPS+Hybrid Technology system.
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Though ID Clothing is the first to offer GPS-enabled apparel, they join several other brands making strides in the world of sensory-sensitive goods, including Soft Clothing, SmartKnitKids, Kozie Clothes and No Netz.
However, the wearable technology isn’t without its critics, who are concerned about privacy issues. Appearing before the New York City Council in April 2014, Thierry said, “If you were the parent of a child who bolts, you would not be worrying about big brother. These are the things moms like me go through every single day — keeping predators away, keeping him from wandering — we live with this elevated stress level every day.” The testimony was part of an effort by the council to implement a medical registry and access to GPS technology for people with developmental disorders, in the wake of the tragic loss of 14-year-old Avonte Oquendo, who wandered from his school in Queens in October 2013 and was found dead several months later.
Lisa Keane Herrera, an applied behavior analysis therapist and special education teacher in New York City, has worked with clients, including Thierry’s son, on the ASD spectrum since 2001 and was present at a focus group for ID Clothing. “You could see that the kids [with autism] were happier overall,” she says. “It’s good for their self-confidence. A task that may have taken thirty minutes may now take five. I know parents that spend hours ripping out tags and seams. This is cutting edge for someone who can’t advocate for themselves,” she says.
For Iallonardi, a special education teacher, ID Clothing is a lifesaver. “My son can go in his drawer, take out a shirt, put it on, and it’s right no matter what,” she says. “He spends his whole life with other people trying to figure out what he wants. The more that he can do for himself, the better his quality of life.”
Anderson and Thierry are enthusiastic about the future of ID Clothing. What’s up next? Producing underwear, T-shirts, sweats and socks, while skirts and cargo shorts are also in the works. Sizes will soon expand to include extra-small and extra-large (only small to large are currently available). Thierry’s ultimate goal: to show at New York Fashion Week. “I see high-end supermodels walking hand-in-hand with the real superstars — those living with autism and other special needs, who are true heroes for getting out of bed every morning and getting dressed all by themselves before they leave for school,” says Thierry. “A splashy debut of a clothing line for this population is every bit as noteworthy as a splashy launch of one by some reality show celebrity. [Kids with autism] are the superstars who deserve to be celebrated.”
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See the House Built Specifically for Autistic Adults
There’s something new on the horizon for three of acres of prime land in Sonoma, California. And no, it’s not a vineyard or winery, but rather, the first home designed specifically for autistic adults.
With one in 88 kids being diagnosed with autism, the question asked by many families is, what to do when these children reach adulthood?
The solution? Sweetwater Spectrum, which is the culmination of the efforts of families of autistic children, civic leaders and autism professionals. Together, they were able to design and fund the privately-developed $9 million home.
Comprised of four 3,250 square feet houses, the community will be able to house 16 residents over the age of 18. Living facilities aren’t the only accommodation as the Sweetwater Spectrum community also boasts common areas that include a communal kitchen, an exercise studio, a one-acre organic garden, , a swimming pool, hot tubs, art and music rooms and more.
To make it even more unique, the place is designed to reduce unnecessary sensory stimulation (which can be bothersome to those with autism). In addition, it has natural ventilation and solar photovoltaic panels on the roof.
While many homes have strict, rigid schedules, there’s no typical day at Sweetwater Spectrum. Rather, residents can work part-time, attend junior college or participate in one of the house’s day programs. Furthermore, the community offers enrichment activities in the evenings and on weekends.
In order to apply, the person must be on the autism spectrum, want to live there and have a care plan, which is very important according to CEO and executive director Deirdre Sheerin.
“We have an abundant tolerance for a person with autism … but we also need to have a safe environment,” Sheerin explains to Fast Company. “There has to be certain level of acting-out behavior that can be managed through a treatment plan, an individualized plan for care.”
So far, the house has received attention across the country and the globe — even as far away as Saudi Arabia. Although living at Sweetwater Spectrum is costly — $3,200 per month ($650 per month for rent and an extra community fee of $2,600 per month) — many people have already expressed interest. In fact, there are 18 active applications and five people have leases or expressed a desire to lease.
Sounds like a pretty sweet deal, right?
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These Autistic Students Struck a Beautiful Friendship With Local Seniors
One group is often ignored, the other group is often underestimated. But what happens when you put them together?
A beautiful partnership.
As 11Alive reports, every Tuesday the seniors at the Dogwood Forest Retirement Community get a visit from autistic students at the Lionheart School in Alpharetta, Georgia. Together they’ve formed a friendship that’s mutually beneficial and also tremendously meaningful.
MORE: Watch How This Boy With Autism Renders His Class Speechless
It’s already difficult to land a job in this recovering economy, but for young adults on the autism spectrum, it’s even harder. According to a study published in HealthDay, only 55 percent of young adults with autism have a job in the first six years after high school.
The students at Lionheart, however, are learning real-life skills that will help them get ready for the workplace. You’ll see at 1:57 in the clip below that these students help deliver mail, set the tables, and entertain the residents with games and music.
Meanwhile, the retirees get to interact with these students and make new connections. As one elderly man named Sparky told the TV station, “It means a lot to have people come to see us.”
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Victoria McBride, head of therapeutic services at Lionheart, told Huffington Post that “social interactions and language processing can be difficult for both students in the school and seniors at the retirement center. Because of this, the pace of conversation and social interaction between the students and the residents can be slower, which allows both parties to engage and interact with more confidence.”
Sounds like a win for everyone involved.
Besides working with the seniors at the retirement center, the younger students at Lionheart also participate in the school’s adorable “LionPaws” program. NorthFulton.com reports that students get to interact with puppies who will become service dogs. This mutually beneficial program helps autistic children relax and reduce their anxiety while their new fuzzy friends get to interact with people.
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DON’T MISS: This Autistic Professor Uses His Disability to Teach Others Like Him
Watch How This Boy With Autism Renders His Class Speechless
Like any other kid on the planet, Jake is just a boy who wants friends. Unfortunately, his differences (he has autism) make him a walking target to bullies at school.
But one day during gym class, Jake did one of the most powerful things that few would have the same courage to do: He spoke up.
In the moving video from UpWorthy, Jake delivers a message that’s exactly what his classmates needed to hear.
“I don’t think you guys see me for me. I just think you guys see me as a big target,” Jake says as his eyes well with tears. “I want to try to be your friend but you don’t try to be mine…and that really makes me feel bad that you don’t really want to know me.”
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Jake’s message is an invitation for us all to talk about bullying, as any child across the country could be in the same situation as he, whether their families know about it or not. In fact, 3.2 million students in the U.S. are victims of bullying each year, and if things aren’t handled correctly, bullying can turn tragic, as demonstrated in the 2011 documentary Bully, which followed the lives of five kids who faced bullying on a daily basis. The film particularly focused on 11-year-old Ty Smalley and 17-year-old Tyler Long, who took their own lives because they were fed up with bullying.
Happily, Jake, who’s now a junior in high school, told UpWorthy that things are getting much better at school.
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“Bullying has had a big impact on my life, but since the movie I’ve made a lot of friends. Recently, I have joined my high school football team! At first I thought they would all be complete jerks, but actually they are pretty cool guys and have helped me through a lot of situations — they stand up for me!”
“For other kids with autism, if you’re getting bullied, try and tell them to stop and not give a reaction — if that doesn’t work, go to an adult. It might seem hard cause we can’t handle stress as well as other kids, but you will get through it and you’ll be awesome — actually you already are!”
Who’s our new hero? Clearly, it’s Jake.
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Music and Mentorship: How an Austin Org Is Helping Foster Kids Survive the System
Working as a prosecutor in the juvenile justice system can be a daily lesson in despair, so when Karyn Scott left her job as a felony prosecutor in Austin, Texas, in 2000 she wanted to find some way to work with troubled youth, especially children in foster care. She had grown discouraged watching a parade of foster kids get shuffled through a burdened system, failing to receive the added help many needed to overcome upheaval, neglect and sometimes abuse.
The courts just don’t have the resources to keep up. There are some 400,000 kids in foster care in the United States and about 30,000 in Texas, according to federal and state agencies. About 59 percent eventually are reunited with a parent, legal caretaker or a family member, and only 22 percent are legally adopted, according to the U.S. Department of Health and Human Services. The rest are left under court supervision or transferred to a variety of agencies, including, unfortunately for a few, juvenile correctional facilities. Some 10 percent are emancipated, given adult status, by the courts and 1 percent run away. During their time in foster care, most children live in family homes, while a small minority are placed in group homes. Many kids bounce in and out of the system.
Scott wanted to find a way to keep children from becoming unmoored as they traveled through the foster care system, a tempestuous journey that can be dispiriting and difficult. She also wanted to offer the courts more resources to address each kid’s particular needs. “They need a consistent friend in their life,” Scott says, especially since their lives are marked by so much volatility — they’re moved often from one care setting to another, disrupting their home and school routines.
Scott’s mission was to create a program that would help encourage bonds with a child or teenager that would last. In 2009, after exploring various programs targeting foster kids, she came up with the idea of using music to ease that connection. Austin, which touts itself in true Texas style as the “live music capital of the world,” seemed like the perfect spot to launch her new initiative: Kids in a New Groove (KING). In its early days, the program, which pairs music teacher-mentors with foster kids in one-on-one relationships, “grew organically,” says Scott, as word spread quickly among Austin’s abundance of music teachers. To date, hundreds of kids have graduated from KING, with 80 children in the program at any one time.
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KING uses both volunteer and paid teachers — the latter are those who have served with the program over the long haul. One veteran is Missy Hance, who studied music education at West Virginia University, before moving to Austin to teach music to both public- and private-school kids. She’s been teaching and mentoring KING students for more than four years. Working with foster care children requires her to be “more sensitive to their needs,” Hance says, since many of them are “down on themselves and do give up a lot easier.” It’s taught Hance a lot of patience, and led her to explore new methods of instruction and communication to better reach foster kids, many of whom may have been neglected or abused. She says music allows her students “to express emotions that they are not always able to express in words. It gives them a voice.”
The program uses a reward system that offers both stability and motivation. Each student earns stickers as they reach a series of curriculum goals set by their teacher. Achievements are continually reinforced: Five stickers earn a small reward, perhaps a T-shirt. Then, as students progress, the rewards grow larger, and if they complete the program, the ultimate reward — they get their own instrument. “I always push myself and try to get the child to get better,” says Hance. “Foster kids or not, theyʼre kids and they are just like any other kids.”
But the programʼs true success stems from its core element, says Scott — mentoring. KING emphasizes developing each teacherʼs mentoring skills and the cementing of a steady, personal connection between teacher and student. Over time, the kids learn to trust an adult, even though so many grown-ups have failed them in other areas of their lives. That “consistent friend in their life,” as Scott characterizes it, never deserts them, not when the child is adopted, moves on or comes of age and graduates from the program. One student, Anthony (his last name is withheld for privacy), learned to play the guitar during his stay in a group home. He was so enthusiastic that he began teaching his roommates how to play. Eventually Anthony, now 14, was placed in a rural home outside of Austin, but he continued to get lessons from his teacher via Skype.
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The act of learning an instrument may confer immeasurable benefits too. Research has shown that studying music can rewire the brain in ways that may affect the processing of emotion and self-awareness, which is “why this program works for kids who have been abused,” Scott says. A 2012 study by the National Endowment for the Arts showed socially and economically disadvantaged children and teenagers exposed to the arts did better both in academic and social development. Studies by the Society for Neuroscience released in 2013 also found that music education helped boost neural pathways in the parts of the brain associated with creativity and decision-making.
One of the programʼs notable graduates is Joshua Moore, a member of the Austin alternative pop band Scarecrow Birdy, which plays in the city’s clubs and, thanks to KING underwriting, recently recorded its first EP. As a child, Moore was in and out of foster care, living in various temporary homes and a shelter while his parents grappled with drug addiction and prison. Moore, a guitar player and songwriter, credits KING for helping him survive his childhood, and has performed at the program’s fundraisers to give back. “Music is not so much expression of life as it is and life as it should be. It’s life as you want it to be,” he told the newspaper Austin American-Statesman in 2012.
Austin’s music community has come out to support KINGʼs efforts wholeheartedly. The organization relies on donations — it holds an annual major fundraiser — to pay for kids’ lessons. A yearʼs worth of instruction for each KING student costs about $1,000. This yearʼs Music for the Soul fundraiser, which will take place on May 1, will headline Martie Maguire and Emily Robison, the founding members of the Dixie Chicks, who now perform as the Court Yard Hounds.
Further down the line, Scott is planning to expand KING’s mentoring-teaching model beyond its current geographic limits — for now, KING works primarily with children in Austin, and also with some in Houston and Dallas. But wherever KING’s future students may come from, Scott has the same aspiration for all of them: using long-term loving relationships to teach them skills like goal setting, accountability and perseverance that will help them navigate the foster care system and life thereafter.
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This Professor Uses His Autism to Teach Others Like Him
In the 1960s when Stephen Shore was just a toddler, doctors thought he was so sick that they recommended institutionalization. Diagnosed with “atypical development and strong autistic tendencies,” he couldn’t functionally communicate until he was four.
But as Truth Atlas reports, young Stephen was special. Despite having autism, he was able to defy what many other people thought he was incapable of. At the incredibly young age of four, he could take a watch apart and fully put it back together. When he was in the third grade, he was reading books on astronomy completely on his own. And, with the help of his devoted parents and teachers, by the time he got into higher grades he was able to succeed academically in school. Eventually, he attained a masters in music at Boston University and later earned a doctorate in education. (Learn more about his fascinating journey in the video above.)
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Now a special education professor at Adelphi University, Dr. Shore uses his own experiences with a learning disability to help people with autism live fulfilling lives.
With autism being one of the fastest growing disabilities in the country (about one in 88 children fall somewhere on the spectrum), educators such as Dr. Shore are invaluable to the autistic community because he knows exactly what it’s like to suffer from the disorder. He told Truth Atlas, “It’s my desire to share my personal experience, combined with educational, practical and research and putting it all together to do what I can to help people with autism lead fulfilling and productive lives to their greatest potential.” Going by his own remarkable story, he’s proof that anything is possible.
This Director Made an Ambitious Movie About Having Autism and Falling in Love
Dating is no small challenge even in the best of circumstances—just look to the online dating industry alone, which raked in a whopping $2 billion in 2013. Now imagine if you’re somewhere on the autism spectrum. Even if you want to be romantically involved with someone, you might not like eye contact, small talk, or being touched — all typical signs of affection. It’s a sensitive issue, but the new film Jane Wants a Boyfriend, starring Louisa Krause and Eliza Dushku, is putting these difficulties front and center in an effort to raise awareness about autism.
A developmental disorder that affects social and communication skills, autism isn’t portrayed onscreen very frequently. As one of the fastest growing disabilities (about one in 88 children fall somewhere on the spectrum), it’s clear that a larger—and louder—conversation is needed.
The film, currently raising funds on Kickstarter, is the second feature-length movie by 26-year-old New Yorker William Sullivan. We recently spoke to the filmmaker about the difficulties of portraying autism on screen, why fans of the “Buffy” actress are in for a treat, and why we all might see a little of ourselves in Jane, as well.
Besides Rain Man, Nell, and Temple Grandin, there aren’t many mainstream films with autistic characters as the lead that come to mind. Why do you think that is?
As far as putting someone on screen from the autistic community, it’s a very sensitive endeavor. You want to create a character that feels right and feels authentic and doesn’t cross any lines. It’s a very risky move. However, this person we’ve created, Jane, is her own unique person. And there is an expression the autistic community has adopted that, if you’ve met one person with autism, you’ve met one person with autism.
So, I hope that people will be able to identify with her. It’s so prolific — the amount of diagnoses that are out there right now — and there are some positive representations out there. There’s a show on FX called The Bridge that came out recently [and] there are some smaller parts, but that’s why this film is being made. It does need to be out there. And people need to see a positive message like this.
Can you explain why a person on the autism spectrum would find it difficult to date?
I see a lot myself in Jane and we all have those moments where, for example, we’re not able to make eye contact, or don’t feel socially confident, or just feel plain “different.” Jane has some tough obstacles to overcome, but ultimately it’s her courage that people are going to relate to. You leave the movie thinking, “I get her. I’ve been her.”
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How do you show the dating difficulties that Jane has in your movie?
We highlight in this film that Jane’s older sister, Bianca (played by Dushku), tries to set her up with someone else on the spectrum. And I think that’s ultimately what’s most frustrating for Jane because she doesn’t want to date someone with autism, she wants to date someone from a 1940s Casablanca movie.
So the first date she gets set up on, she gets really frustrated and tells her sister, “You only set me up with the guy because you think that’s all I’m worthy of.” And ultimately she is capable of so much more than what people expect of her.
Is there anything that needs to change with society’s perception of autism? There’s this stigma that a person with autism has a savant-like memory like in Rain Man.
I think our film embraces some of those notions but also shakes them up too. You use those cliches to enter a story and once you’ve hooked the audience, you turn the cliches upside down.
Were you or Louisa (who plays Jane) cautious in any way that you portrayed a person with Aspergers?
We had an Aspergers consultant that we worked with, and he made us feel very good about trying things and seeing if they worked. Louisa Krause and I spent so much time in Jane’s head that we just followed our impulses based on the research we had done. I felt prepared with enough knowledge to tell this story.
How has your experience with crowd-funding on Kickstarter been like?
Extremely humbling and we’re deeply, deeply grateful. We’ve had a really good mix of friends, family, and strangers who have stepped up to help us — and the autistic community has been really great about helping spread the word. Also Eliza does have a significant fan base. I think people will be really excited to see her in a role like this. It’s unlike anything she’s ever done. Usually she wears leather pants and holds weapons — but in Jane, she’s very beautifully stripped down and vulnerable. I think fans will be really excited to see her do something that is so different but at the same time it’s so her.
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What message are you trying to send with your film?
It’s about courage. Ultimately, I think by putting Jane’s story on screen we’re trying to raise an awareness that people on the autism spectrum have wants, desires, hopes and dreams just like anyone else’s.
We’re presenting a sense of hope that no one should be ashamed to stand up for the desire to be treated like an equal. It’s taken Jane a huge amount of bravery to even voice that she wants a boyfriend and it takes courage to take action on that. I hope that everyone walks out of this saying, “I’m a person, I deserve love like everyone else.”