When Norien was born, his parents faced an immediate challenge. Their son, now 2 years old, was born with a rare congenital condition called arthrogryposis multiplex congenita (AMC), a disorder that affects the movement and flexibility of a newborn’s joints and muscles. “The doctors at home in Virginia had no idea what it was,” says Tess, Norien’s mother.
Unlike other conditions that inhibit movement, AMC doesn’t worsen with age, so long as kids with the condition get proper medical treatment. So Norien’s parents had to figure out a way for their son to receive expert care at Shriners Hospital in Philadelphia, and traveling by train to and from the hospital quickly became expensive. That’s when they reached out to Angel Flight East, a nonprofit run by volunteer pilots who combine their love of flying with a desire to help others.
“It’s very rewarding to be able to take something that you love doing and give back to folks in need,” says Nevin Showman, a pilot for Angel Flight Mid-Atlantic.
Watch the video above to hear Norien’s story, and to learn how Angel Flight and similar nonprofits make a difference nationwide.